My Journey back to Life

My Story – Part 1

My story begins with a lump I found during a routine breast exam in March of 2014. It was on my right breast. At first, I was in denial—of course I was—but that didn’t last long. After about three weeks, I finally made an appointment with a gynecologist. As I suspected, she ordered a mammogram and a bilateral sonogram.

I didn’t hesitate—I went right away to get the tests done. The radiologist told me there was a suspicious mass and that a biopsy would be necessary. The biopsy was scheduled for March 6, 2014. The wait for the results felt like forever.

Wanting to be proactive, I had also scheduled an appointment with a breast surgeon for March 19, 2014. I went with my husband. The doctor explained that the mass was ductal carcinoma. He discussed my options: a lumpectomy or a mastectomy. He couldn’t yet tell me the cancer stage definitively, but based on the information available, it was likely a clinical stage one. Still, not all the reports were in.

He was ready to schedule surgery immediately, but I wasn’t. It was too much—too fast. I needed time to absorb it all in my own way.

While I was trying to process everything, I did a lot of reading. I also reached out to Sloan Kettering in Commack, Long Island, and arranged to have all my medical records sent there.

In the meantime, the original surgeon called. He had received all my test results and recommended an MRI biopsy because other suspicious masses had appeared. That biopsy was scheduled and completed on April 7, 2014.

I later learned that Sloan Kettering didn’t perform surgeries in Commack, so I rescheduled my appointment for their Manhattan location on April 17, 2014. I did my research carefully, wanting to find a doctor I could trust—someone knowledgeable, compassionate, and open to considering all options.

That’s when I met Dr. Van Zee. She was wonderful: calm, caring, and direct. She believed a lumpectomy was the best course of action. The total size of the masses was about 2.0 cm, and she felt confident that removing them, along with three sentinel lymph nodes, would be sufficient. Around this time, I also learned I was HER2 positive (3+), which meant I would need ACT rounds of chemotherapy and radiation afterward.

We scheduled surgery for May 14, 2014. It went very well—an in-and-out procedure. Dr. Van Zee successfully removed the tumors, but one of the lymph nodes showed cancer that was spilling out. At the follow-up appointment, she told me I would need to have all the lymph nodes removed. I was hesitant, but she explained that we wouldn’t revisit that until after chemotherapy was completed.

After a four-week break, I went to Sloan Kettering in Rockville Centre to meet my oncologist, Dr. Troso—a truly wonderful doctor. She explained everything in detail to both me and my husband. She even wrote it all down in the little journal I had been keeping. A treatment schedule was set. My first chemo treatment would begin on June 25, 2014.

Part 2 coming soon.

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Beyond Bipolar is not currently staffed with doctors or medical professionals, but what we offer is invaluable: several generations and over 100 years of collective lived experience with Bipolar I and Bipolar II.

 

Our journey equips us with insights, understanding, and compassion that only come from walking this path ourselves. 

Yes, 504 Plans and Individualized Education Programs (IEPs) are essential, for ensuring students with disabilities succeed in school.

 

However, a strong plan alone isn’t enough. Proper training for teachers and staff is vital.  

Ghost Writer

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Reserved for Anonymous Bloggers

Linda Burby

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50 Years Diagnosed

Welcome to my blog! I’m Linda Burby, a 71-year-old who has worn many hats throughout life—blogger, writer/artist, wife, mother, sibling, grandparent, and great/great-grandparent (and yes, there are many!). My journey has been anything but traditional.

Despite encouragement to follow a college-prep track in high school, I chose a two-year Health Occupations program instead. After working summer jobs and various other positions, I eventually found my calling as a Social Worker. Later in life, I returned to college and earned a Bachelor of Arts degree in Social Welfare.

My career began with a focus on the Aging population, but by 2005, I shifted to working in the Mental Health field. In 2010, I became a certified Peer Support Specialist, which allowed me to join an ACT team. These teams provide community-based mental health services aimed at reducing hospitalizations.

What makes my journey unique is how I’ve been able to combine my professional expertise with personal experience, often saying, “I can build from both sides of the desk.” Each hat I’ve worn has shaped who I am and how I connect with others living with bipolar and mental health needs, and I’m excited to share my insights, stories, and reflections with you here.

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Welcome to my blog! I’m Janet, blogger, cancer survivor, animal lover, and wife, who has accumulated an impressive 62 years of insight into living with bipolar I.

I hope that by sharing my experiences with mental health, I can provide a better understanding of the emotions and struggles individuals with bipolar disorder face when they are not fully understood due to their disability. People can be cruel and lacking in empathy, which only adds to the difficulties faced by those with bipolar disorder.

I will dive into the therapeutic power of nature and the ocean. I find solace in these serene environments, my mind can fully immerse in the sensory experiences around me.

I encourage others not to be afraid to seek help! I have found counseling or support groups, connecting with people who truly understand can be an amazing source of comfort and growth. Join me on this journey.

Grayson Adams

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    Welcome to my blog! I’m Grayson Adams, an 11-year-old student, blogger, and someone who’s learning to navigate life with bipolar I. I was recently diagnosed, and while it can be tough sometimes, I want to share my experiences with people my age—because I know I’m not alone in facing challenges.

At school and at home, things aren’t always easy, but I’m lucky to have services that help me and an amazing family who supports me every step of the way. Here, I’ll talk about all kinds of things—my ups and downs, funny moments, tough days, and everything in between.

My goal is to help others understand what life can be like for someone my age with mental health needs. Whether you’re dealing with something similar or just curious about my story, I hope you’ll join me on this journey. Let’s figure this out together!

Jonathan Adams

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Welcome to my blog! I’m Jon Adams a multi-talented individual with a diverse career outlook. As a founder, blogger, entrepreneur, and product developer, I have a wealth of experience. However, my journey has not been without challenges. Living with Bipolar I am determined to share my opinions and experiences to help others.

With 51 years of personal insights, I aim to provide valuable information about what has worked for me and what hasn’t. I firmly believe that knowledge is power, and through our platform, Beyond Bipolar, I hope to tackle the ongoing stigma associated with mental illnesses.

Beyond Bipolar is not just about bipolar disorder itself; it’s about exploring the broader aspects of mental health. I invite you to join me on this journey as we unlock our abilities.

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Welcome to my blog! I’m Perri Adams a professional office manager with extensive social media experience. However, my roles extend far beyond professional accomplishments. I am a devoted wife and a loving mother to not just one or two, but an astounding 11 children. 

My life experiences have shaped my unique perspective, spending the past 25 years living with my husband and children who face the challenges of bipolar disorder and anxiety.

With a wealth of knowledge and personal encounters with mental health, I aim to share opinions and experiences to help others navigate the disappointments that often arise within the school system when it comes to children with mental disabilities. 

I will shed light on the struggles faced by individuals with invisible disabilities, which are often misunderstood or overlooked by those who lack proper understanding. Join me on my journey.